Miscellaneous Resources

Some leading patient-based advocacy organizations. Advocacy organizations are a great source for information on topics including health and disability insurance, treatments and drugs, support groups, and more.

Advocacy Action Page (United Ostomy Associations of America)

UOAA welcomes you to the Advocacy page, linking you to helpful resources, helping you learn more about how public policy is made, and showing you how you can be a part of the process.

Advocacy for Patients with Chronic Illness Inc.

Advocacy for Patients with Chronic Illness, Inc., where patients can get free information, advice and advocacy services

Digestive Disease National Coalition

Leading public policy advocacy organization in our nation’s capital (U.S) for persons affected with digestive diseases

In Contact

National charity for people affected by bladder and bowel problems. We provide support and information and represent the interests of people with continence problems.

LMCA 

LMCA is the umbrella body for national voluntary organizations working to meet the needs of people with long-term health conditions.

Australian Council of Stoma Associations (ACSA) Australian Council of Stoma Associations Inc represents, at a national level, the interests of 22 regional Stoma Associations located throughout Australia. We provide liaison with the Australian Government and appliance suppliers in relation to the Stoma Appliance Scheme, coordinate ostomy related support services throughout Australia, provide advocacy for persons living with a stoma in Australia and publish the national journal “Ostomy Australia” and a general ostomy information booklet “A Beginning Not an End”.

South Pacific Ostomy Association Association of Ostomy Associations, … South Pacific Ostomy Association … (Associate Member), Australian Council of Stoma Associations.

Mexican Association for Wound Care and Healing AMCICHAC is dedicated to advancing wound and ostomy care in Mexico through the coordination of an interdisciplinary effort by facilitating the collaboration between individuals and associations dedicated to wound care. These efforts are focused in five key areas: public policy, clinical practice, education (training), research and interrelation with the international wound care community.

Victoria – Australian Council of Stoma Associations. is a National Body representing 22 ostomy associations throughout Australia which provide personal support, care, information, encouragement and assistance to persons who, as a result of radical surgery as a result of disease, injury, birth defect or other causes, have an opening in the abdomen (called a“stoma”) for the evacuation of products from the bowel or bladder. People who have a stoma no longer have normal bowel or bladder function and must wear a disposable bag, or appliance, attached to their abdomen for the collection of bodily waste. These appliances are called stoma appliances or ostomy bags. They are more popularly known as “colostomy bags” (although there are other types of bags).

British Colostomy Associated Information and practical advice related to the procedure of having a colostomy. An outline the actual process of the operation, the risks involved and the nature of the illnesses such a procedure would benefit. For those who have already undergone a colostomy, the following information will aim to provide relevant information on living with a colostomy and the options available for life in the future.

Association Latino Americana de Ostomizados (South American Ostomy Association) Association of affiliated Regional Ostomy Associations that are committed to the improvement of the quality of life of ostomates worldwide. The work of the Association, managed by ostomates, will be organized by a Coordination Committee, consisting of representatives of each of its affiliated Regions. According to the Charter of Ostomates’ Rights, the Association encourages the highest possible standards of surgery, medical attention and patient after-care for ostomates, and, the use by medical professionals of trained ostomate volunteers as a member of the multi-disciplinary team organized to help rehabilitate ostomates. It motivates ostomates around the world to be
engaged in forming and running Ostomy Associations.

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